Board of Directors
Founding Chairman
Professor and Chancellor
University of the Philippines- Manila
Geneticist, Pediatrics
Cynthia K. Magdaraog
President
Parent of Pompe Disease Patient
Elpidio M. Paras
Vice President
Grandparent of Maple Syrup
Urine Disease patient
Businessman
Sylvia C. Estrada, MD
Secretary
Pediatric Endocrinologist and
Metabolic Physician
Newborn Screening Follow-up Program
NSC-NIH
Amelia R. Fernandez, MD
Treasurer
Neonatologist
Former Dean of the College of Medicine
University of the Philippines
Board Members
Vice-President
United Laboratories
Manny Perez, SJ / Priest
Prefect of Health, Phil. Province
Society of JesusMinister Jesuit Residence
Ateneo de Manila University
Catherine Lynn T. Silao, MD, PhD
Molecular Geneticist / Pediatrics
Program Coordinator, Molecular Genetics Unit
Institute of Human Genetics - National Institute of Health
University of the Philippines-Manila
Cristina G. de Leon Hinlo
Occupational Therapist
Program Director



HOW CAN YOU HELP
Cash Donations
In-kind Donations
Volunteer Service
Prtner-initiated Awareness
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