RD groups advocate accessible care for all at AZ Helps Academy QUEZON CITY - Representatives of patient support groups, medical professionals, policymakers, and thought leaders gathered for the first module of the Health Leadership, Policy, Advocacy, and Sustainability (HELPS) Academy, organized by AstraZeneca Philippines, on November 20-21, 2025.During the breakout

World Health Assembly adopts Rare Disease Resolution   GENEVA, SWITZERLAND - Member States of the World Health Organization adopted a landmark resolution declaring rare diseases a global health priority in an effort to ensure that no patients are left behind. The Resolution recognizes that over 300 million people globally live

Shining a Light on Rare Diseases: National Rare Disease Week 2025 Held annually during the last week of February under Presidential Proclamation No. 1989, National Rare Disease Week culminates in Rare Disease Day on February 28th—a global initiative to spotlight rare and often overlooked conditions. This year, as part of

Statement of the Commission on Human Rights on the Commemoration of National Rare Disease Week 2025 Through a press statement published on Rare Disease Day, the Commission on Human Rights (CHR) expressed their support to Filipinos living with rare diseases and affirmed their rights as it joined the nation in

#CareForRarePH: How can you be part of NRDW 2025? SAN JUAN, M.M. - The Philippine Society for Orphan Disorders, Incorporated (PSOD), together with the UP Manila Institute of Human Genetics, Newborn Screening Reference Center, and Volunteer Youth Leaders for Health - Philippines, invites volunteers, advocates, organizations, and agencies to join

PHL to host Asia Pacific conference on rare disease MANILA - Rare disease leaders and advocates from across the Asia Pacific region will be gathering for the annual conference of the Asia Pacific Alliance of Rare Disease Organizations (APARDO) on November 22-24, 2024.  The annual conference aims to serve as

Share Your Colours: NRDW 2022 to highlight rare disease patients and the role of the public in awareness promotion Rare diseases refer to life threatening and chronically debilitating diseases that only affects few individuals in society. Aside from their low prevalence, special combined efforts are needed to address them. Throughout

NRDW goes digital, to mark 12th year on top of COVID19 pandemic In the Philippines, National Rare Disease Week which is held every last week of February places the concerns of the Filipino rare disease community on the spotlight. The event which culminates to the global observance of Rare Disease

Rare Disease International Statement on COVID19 Response and Recovery What this global pandemic has shown is that “the virus does not discriminate, but its impacts do” - Antonio Guterres, United Nations Secretary General To ‘Build Back Better’, do not leave behind people living with a rare disease in COVID-19 response

Dear Moms, It's OK to stare: Here’s how you can help make this an inclusive world A few years ago, I was having coffee with my daughter Jessy when I noticed some kids from another table staring at her intently and whispering at each other with obvious wonder. My daughter,