World Health Assembly adopts Rare Disease Resolution

 

GENEVA, SWITZERLAND – Member States of the World Health Organization adopted a landmark resolution declaring rare diseases a global health priority in an effort to ensure that no patients are left behind.

The Resolution recognizes that over 300 million people globally live with one of more than 7000 rare diseases, most of which begin in childhood and can lead to significant physical, emotional, and financial hardship.

The Resolution also urges countries to integrate rare diseases into national health planning, improve diagnosis and care through universal health coverage, promote inclusive policies, and accelerate innovation, research, and access to affordable treatment. Importantly, it mandates the World Health Organization to develop a comprehensive 10-year global action plan on rare diseases, with measurable targets to guide progress toward equity, inclusion, and access to care for all affected individuals.

 

 

 

About the Philippine Society for Orphan Disorders (PSOD)

The Philippine Society for Orphan Disorders (PSOD) is a non-profit organization whose mission is to uphold the primary concerns and welfare of individuals with rare disorders in the Philippines by directly addressing, supporting and protecting their health and general well-being. PSOD is dedicated to being the central network for the advocacy and effective coordination of all viable efforts to sustain a better quality of life for individuals with orphan or rare disorders. To learn more about Rare Disease, visit http://www.psod.org.ph