PATIENT CARE & FAMILY SUPPORT
- Help patient-members access medical treatment and supportive care.
- Provide family members psycho-social support as well as learning opportunities to improve their home care skills and increase their financial capacity.
AWARENESS & ADVOCACY
- Increase public and stakeholders’ awareness of the rare disease sector thru tri-media and various social media.
- Engage stakeholders in support for our programs.
- Participate in policy formulation on matters that will impact on the health delivery system or patients with rare disorder (i.e. Rare Disease Act)
- Participate in like-minded patient support group alliances