About PSOD

Children born with rare disorders may appear normal at birth, only to develop problems later in life.

Rare or ORPHAN DISORDERS are conditions that affect less than 1 in 20,000 individuals. They are long standing, life threatening, progressive, disabling conditions that require multidisciplinary care.

That lack of understanding of these disorders makes these children at risk for serious consequences due to delay in, and sometimes, incorrect diagnosis.

These lives of these children are constantly in danger because, even if their conditions are diagnosed, their families cannot afford the high cost of treatment. For the few who may have the means, optimum care is still elusive due to scarcity of available medications and health care facilities equipped to handle these individuals with special needs.

With help, it is possible for afflicted children & their families will live to realize their dreams.

The Philippine Society for Orphan Disorders, Inc. (PSOD) is a non-stock and non-profit organization established in 2006 to act as patient support group to persons afflicted with rare disease (otherwise known as orphan disorders).

To increase public awareness about rare disorders in the Philippines;
To develop and sustain a nationwide registry of relevant and material statistical information, medications, drug trials and all other pertinent information about orphan disorders;
To promote and support relevant and timely researches for a better understanding and treatment of orphan disorders;
To assist patients and their families, family support groups, doctors and researchers in the management of these conditions;
To participate in the policy formulation, advocacy and legislations of national and international relevance about orphan disorders;
To develop and strengthen the relationship among the institutions involved in the care of the individuals with orphan disorders;
To develop member’s core competencies in the management of orphan disorders; and
To be financially self-reliant and to mobilize resources in the pursuit of the organizational objectives