Care for Rare Volume 2 Issue 4

In this issue:

• Caring Together for Rare: PSOD holds seminar-workshops on day-to-day therapy and diet
• PSOD now registered agency under DSWD
• Rare Fun Run Ala Eh!
• Photogallery: Caring Together for Rare
• Prof. Dave Sillence visits OI Support-Phils
• VYLH-Philippines push on with signature drive
• Partner in Focus: Top Draw Animation / Wayne & Stella Dearing

Care for Rare Volume 2 Issue 3

In this issue:

• ‘Strength in Union’ – A Forum on Family Support
• Rare Disease Bill re-filled in 15th Congress
• Creation of office under DOH address “rare diseases” sought
• Support & Join the Petition Campaign for A Rare Diseases Act of the Philippines
• PSOD Family Support Group for rare disorders formed
• Support Group in Focus: O.I. Support-Philippines
• Rare Disease in Focus: Maple Syrup Urine Disease
• Partner in Focus: Mead Johnson Nutrition
• Support PSOD thru Buy and Share
• Letter from a Mom
• Coun. Alvarez-Reyes and VYLH rally Santiago City students to support signature campaign
• PSOD joins Disability Month celebration
• Keeping the Faith for Theo

File: 5th Issue Newsletter - 22 Dec 2010.pdf [1.60MB]
Category: newsletter
download: 172

Care for Rare Volume 2 Issue 2

In this issue:

• PSOD, IHG sign MOA for orphan disorders
• Parents urged to apply for Philhealth, PWD cards for kids with orphan disorders
• PSOD applies for DSWD registration, PCSO grant
• Dr. Cutiongco-de la Paz, new IHG director
• IHG, UP-PGH hold 1st metabolic clinic
• A Mother’s Tale: Living with Hunter Syndrome
• PSOD joins AFUSA Partners’ Meeting on donor management
• PSOD joins ‘Rights and Status of Children with Disability’
• Partners in Focus: Breathe Initiative
• In Memoriam: Remembering Basti
• How can you help?

File: PSOD-newsletter-issue4-sml.pdf [2.49MB]
Category: newsletter
download: 326

Care for Rare Volume 2 Issue 1

In this issue:

• PGMA declares 4th week of February as National Rare Disease Week
• PSOD joins world rare disease awareness celebration
• PSOD chairman as new chief of UP-PGH Dept of Pediatrics
• 1st Family forum on rare disease “Working Together to Care for Rare”
• Rare Diseases in Focus: Galactosemia & Phenylketonuria
• Partner and Friend in Focus: Malu Cortez

File: PSOD-newsletter-issue3.pdf [1,019.35KB]
Category: newsletter
download: 392

Care for Rare Volume 1 Issue 2

In this issue:

• PSOD joins the 2009 International Joint Symposia on Rare Diseases in Taiwan
• Pingoy LHB 6937 echoes Diseases in Taiwan Angara bill on Rare Diseases
• Petition campaign warms up
• Why push for a Rare Diseases Act of the Philippines?
• Help Save A Life

File: PSOD-newsletter-vol1-issue2.pdf [3.50MB]
Category: newsletter
download: 245

Care for Rare Volume 1 Issue 1

In this issue:

• Angara Bill promotes awareness for Rare Disorders
• PSOD kicks-off campaign for 500,000 signatures
• Partner in focus: Genzyme Corporation

File: PSOD-newsletter-vol1-issue-1.pdf [1.06MB]
Category: newsletter
download: 517