Links

Legislation

• Senate Bill No. 3087: Rare Diseases Act of the Philippines
  An act to help persons afflicted with rare diseases by creating an office of rare diseases in the department of health, encouraging the conduct of research and development activities on rare diseases, and providing for fiscal and regulatory incentives for the manufacture or importation of healthcare products for use by such persons.
  

Companies

• Genzyme Corporation
  The corporate web site of Genzyme Corporation. A leading bio-technology company that strives to make an impact on the lives of people with serious diseases.
  

Organizations

• Acid Maltase Defeciency Association
  The Acid Maltase Deficiency Association was established in 1995 to assist in funding research and to promote public awareness of Pompe disease.
  
• National Institutes of Health - UP Manila
  The creation of the National Institutes of Health-UP Manila was approved by the Board of Regents of the University of the Philippines at its 1094th meeting on 26 January 1996 to put emphasis on the research function of UP Manila, and to place it at par with the University's reputation of excellence in instruction, particularly the Colleges of Medicine, Public Health and the other academic units, and in public service as exemplified by the Philippine General Hospital, the country's premier tertiary care training hospital.
  
• National Organization for Rare Disorders
  The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them.
  
• Taiwan Foundation for Rare Disorders
  TFRD, established in 1999, has been an active force in advocating for rare disease patients in respect of medication, education, and employment, and will continue to give its best effort to light up the lives of many rare disease patients.