How To Help

Support the enactment of a "Rare Disease Act of the Philippines"

The Philippine Society for Orphan Disorders, Inc. needs 500,000 signatures!

Please join the campaign to increase awareness on rare diseases and to rally lawmakers in passing Senate Bill 3087 or the Rare Diseases Act of the Philippines.

The Bill will help provide patients with rare diseases better access to adequate medical care, health information, and healthcare products needed to treat their conditions. It establishes a system to coordinate a sustainable research & development initiatives and resource generation efforts among relevant agencies of government and private sector toward improving the quality of life of patients with rare diseases and their families.

PSOD appeals for your assistance to raise awareness regarding rare diseases and to rally support for the Bill.

You can be part of the campaign thru:

Online Petition. To join the petition online, go to www.psod.org.ph or use the following link: http://www.thepetitionsite.com/2/rare-diseases-act-of-the-philippines

Texting. Just text your name, age, and affiliation (school, company or organization) to 0928-1203708 and a brief message of support (i.e. I support the enactment of a “Rare Disease Act of the Philippines”).*

or by

Campaigning for Signatures. Help us spread the word and get people to join the petition by:

Forwarding this message to your network
Printing the petition sheet sheet and having your network of family and friends sign the petition, then send either by
telefax (+632 7256519)
email (scan and send to info@psod.org.ph)
courier (c/o Cynthia Magdaraog, PSOD President, 24-D Goldland Plaza, #8 Eisenhower St., Greenhills, San Juan, Metro Manila)