Fund

The Emergency Medical Fund

Every so often the PSOD receives appeals from parents seeking assistance for medication and life saving treatment immediately needed by their children battling a rare disease in medical crisis. The Emergency Fund subsidizes:

  1. Diagnostic test (to confirm suspicion of presence of rare disease or check progress of the disease)
  2. Short term supportive management of complications arising from the rare disorder (hospitalization, medications, treatment, therapy)
  3. Purchase or acquisition of supportive devices

Thru our publications and website, we list the specific appeals of our patients. Your contributions may be patient specific, or may be pooled towards the general Emergency Medical Fund.