Philippine Society for Orphan Disorders - Everyone has a right to life

About PSOD

To increase public awareness about rare disorders in the Philippines;
To develop and establish a nationwide registry of relevant and material statistical information, medications, drug trials and all other pertinent information about orphan disorders;
To assist patients and their families, family support groups, doctors and researchers in the management of these conditions;
To promote and support relevant and timely researches for a better understanding and treatment of orphan disorders;
To participate in policy formulation, advocacy and legislations of national and international relevance about orphan disorders;
To develop and strengthen the relationship among institutions that are involved in the care of individuals with orphan disorders;
To develop and provide training for parents, families, health professionals, paramedical personnel and community health workers on the care of patients with orphan disorders;
To develop member’s core competencies in the management of orphan disorders; and
To be financially self-reliant and to mobilize resources in the pursuit of organizational objectives.