This is so because the nature of their illness is hardly known due to lack of information and only a few medical professionals particularly in the country, are aware of these disorders and know how to diagnose and address these conditions.

Over several decades research and clinical trials worldwide have been very slow due to only a handful of known cases. However in recent past, the tireless efforts and the admirable dedication of medical researchers, professionals and drug companies in developed countries have resulted in breakthrough therapy and hopefully, a possible lifelong cure for a growing number of the rare disorders. In the Philippines, a handful of Philippine medical professionals from the University of the Philippines, National Institute of Health, Institute of Human Genetics have been attending to these patients, have been dedicating themselves to create awareness in the country, and continue to undertake clinical trials to contribute to the body of world knowledge that would lead to improving the health of patients.

Because the nature of rare disorders are long standing, life threatening, progressive, and require multidisciplinary care, available therapy likewise require life long administration. Until such time further breakthroughs happen (as we are very hopeful, it will), treatment is illusive for the patients due to its prohibitive cost and accessibility.

The Philippine Society for Orphan Disorders, Inc. invite you to join them in the noble task of creating a self-reliant Endowment Fund that will support the treatment of patients with rare disorder, as well as sustain the efforts of the medical community to find a cure for them the soonest possible time.

Your Care Will Nurture Them Back To Health

Individuals, organizations, corporations can help us build the Endowment Fund by way of contributing to the fund as:

Donors may spread their contributions over a period of one year.

At your option, we would like to acknowledge your help by way of listing your name in our roster of donors in our publications and website.

Above contributions will solely be for the build up of the Endowment Fund. Donors shall be kept abreast of the growth of the Endowment Fund as well as the utilization of the interest earnings for the sole purpose of sustaining the therapy of patients, and funding of researches and clinical trials, thru an annual progress report.

Any donations less than P50, 000 are welcome to help us fund the operational and administrative requirements of the Philippine Society for Orphan Disorders, Inc.

With your help, patients born with rare disorders begin to hope for a brighter tomorrow.